John is five pounds, two ounces! He is really growing. He averages an ounce each day; however, he surprised us a couple times this week with a growth spurt of two ounces. After completing two bottles on Mondays, he is now able to practice his feedings if he is wide awake. Typically, he drinks about 35 cc’s before he is tired and needs the rest via his feeding tube. We think that there will be a lightbulb that goes off and he will have the endurance to take all six feelings by mouth

John met with the CHOP cardiologist today for a consultation to review his three heart rate tests. His average heart rate is normal. There wasn’t any indication why his heart rate will fluctuate into the 200’s. The doctor did mention that it could even be discomfort from his feeding tube that could cause the increased rate. Overall, the heart rate patterns are normal and he will be re-tested in two weeks by the same cardiologist.