And, there’s Jimmy :)

While this week has had us quite busy with Johnny, Jimmy has been a great big brother! The blog updates have been quiet recently, but stay tuned for some updates from the last couple of months.

As of today, Jimmy is 18 months! Running laps around the house, pointing to everything, shouting for Dad, turning the light switch on and off, dancing, and sharing his goldfish with Dunder Dog are all part of his daily activities. He really enjoys playing with his basketball hoop. It is always a surprise what he dunks. It ranges from his toy shovel to the pretend corn-on-the-cob. He also likes cars and will make the corresponding sounds of “vrooom.” When he isn’t playing basketball or cars, you will find him busy at his picnic table creating art. He love coloring and most of the time it is in his coloring books. He accidentally worked on some wall murals in our family room. We welcome any advice on crayon removal from walls! At school, Jim creates some masterpieces. He is always eager to show off his gallery in our kitchen.

At school, they use basic sign language. Earlier this month, Dad was sharing his yogurt and asked Jimmy if he wanted more. Jimmy surprised us in his response – sign language for the word more. We were all excited, and in turn James was very excited that he was able to communicate with us and has been asking for more quite often! Since then, Grandma and Grandpa have been showing Jimmy YouTube videos of baby sign language. He might even pick up a few more words!

With mommy on bed rest at the end of her pregnancy, we had to adjust Jimmy’s bedtime so he would wake up earlier for school. Daddy started new bedtime rhythms to get Jimmy to bed earlier. This includes brushing the teeth, blowing kisses, and pointing upstairs. We have been very lucky that he goes right to sleep with no fuss! Way to go Daddy! We are hoping this a pattern that will continue when Johnny comes home.

One exciting update is Jimmy had is 6 month checkup with his glasses. His eyes are doing great, and we picked up a bigger pair of glasses today! We will keep you updated with the new look.

Although Jimmy is not old enough to see his brother in the NICU, he has visited the waiting area. In fact, he now walks the entire way from the parking garage to the Special Care Nursery. Over the past year, Jimmy would visit the NICU to say hello. At each visit, he is always in awe of the large fish tank in the entrance. It is a beautiful tank filled with a variety of fish. It captures his attention and now that Jimmy is into pointing, it was neat to see him pointing to every fish. Jim and I especially like the inscription on the tank with the analogy associated with the Special Care Nursery:

“Our SCN resembles this fish tank. There is a balance of the fish, water, light, darkness, plants, gravel, and filters. When everything works, it is beautiful! The tank is dedicated to all the hardworking staff that allow us to provide the best care for your children.”

We are truly impressed by the care that Jimmy received, as well as the care Johnny is experiencing. Although it was 18 months ago, it still seems like yesterday when we were in the NICU for Jimmy. He has come a long way and we are very grateful for the nurses and doctors that spent five weeks caring for Jimmy. It is a reminder to us what good hands Johnny is in for the next few weeks until Johnny comes home and Jimmy can meet his little brother.

Johnny’s Progress

It’s hard to believe that it has been five days since Johnny’s birthday. If there is one word that best describes how we feel, it is blessed. Angie and I reflect on each day and we are amazed by the strength and well being of our little Johnny — and for that, we thank God.

We have each had the opportunity to hold our little boy twice now, and each time we reflect on how far he has come in this short time. Cuddle time with Mommy and Daddy is by far the one thing that he absolutely enjoys the most (a close second to food 🙂 ). It is remarkable to see how calm he is after thirty minutes of mommy/daddy time.

On Wednesday, Johnny started phototherapy sessions to bring down his biliruben counts. We suspect that he shouldn’t be under the lights too much longer, although it will be hard to see him have to give up his cool looking shades when the time comes :). Mommy was quite excited for Daddy to check out the new look. It is an understatement with how creative, thoughtful and generous the nurses are in the NICU with their ability to inspire a smile. As for the antibiotics that were administered earlier this week, they were able to stop those on Thursday, after three consecutive negative blood culture tests.

On Thursday, Johnny reached one of his first major milestones – breathing room air without assistance from the CPAP. It was great to see his nose free of medical equipment. Once he passed 24 hours of not needing additional oxygen, his nurse moved his feeding tube from his mouth to his nose. Finally, John is relaxed enough to close his mouth and breathe calmly via his nose.

The one test that had Angie and I a bit anxious was the ultrasound to determine whether or not there were any hemorrhages in his brain. On Friday, we were relieved to hear that the ultrasound came back clear and things are looking good.

After his birth, Johnny is hovering around 4lbs 1oz for the last couple of days. In that same period of time, the doctors and nurses have been adjusting his food accordingly. On Wednesday, he was at just 6 cc’s of food. Two day’s later, he’s up to 33cc’s! That is just over 1oz of food. We suspect that he will be all milk by the end of the weekend, as his IV for nutrition may be completed tomorrow. Go Johnny Go!

John was able to meet a few more family members – Uncle Tim and Uncle Mike 🙂 His grandparents were also able to see him again. Aunt Abbie is anxious to meet the little man, but she is fighting off a cold that she doesn’t want to expose it to the NICU.

Last, but certainly not least is an Angie update. Mommy has been inspiring through this whole experience. In less than 48 hours from when she started labor, she was discharged from the hospital and is hard at work providing for Johnny and Jimmy. Great job Mommy!

Thanks again everyone for your love and support. God Bless!

The Clarke’s

24 hour update

Johnny is officially 24+ hours old and the doctors are very pleased with how well he is doing. After our first time visiting our little boy, it was amazing to see Johnny open his eyes when he heard Angie’s voice for the first time.

So far, John’s blood work results have come back well, chest xrays are good, and he should be wrapping up his round of antibiotics tomorrow afternoon. Friday will be his first CAT scan. The first twenty four hours his primary nutrition was clear liquids through the IV. Today, they were able to start John off with two rounds of 3ccs of milk. As of this evening, Johnny has had two rounds of 6ccs of milk. Woohoo! You will notice in the pics that he is still hooked up to his CPAP. The good news is that he was administered a boost of oxygen for a limited time, and right now he is breathing the same levels as the rest of us. The CPAP is providing some extra pressure to assist him with his breathing. Oh yes, his weight is now at 4lbs, 2oz.

So, what’s life like for Johnny in his Giraffe Omnibed? Generally he is quite content…. when left alone. When his nurses start repositioning his equipment, or it is time for the temperature reading and diaper change, he is not a happy camper! Amazingly enough, Johnny enjoys his binky, especially when there is a little sugar water treat on the end. He even tried to suck his thumb, although that became difficult with his IVs getting in the way.

So, what beats binky time? MOMMY TIME:). Angie was able to hold Johnny for the first time today, and he (and she :)) absolutely loved every minute of it. Johnny was not thrilled with all the activity leading up to the cuddle time, but the second he got to give his mommy a hug, he was immediately comforted and became the most content we have ever seen him 🙂

The NICU Staff has been remarkable as they always were with John’s big brother. It is quite comforting returning to the environment in open arms… Many of the nurses were quick to come over and say hello and catch up on Jimmy. It was also neat seeing, and brought back many memories, the blanket covering Johnny’s giraffe is the same one used when his big brother was there.

Last but certainly not least, Johnny was introduced to his Grandparents and Aunt Meghan and Uncle Andrew, with more visits to come in the future.

Thanks to everyone for their continued prayers and support!

Happy Birthday John Xavier

Angie and I are pleased to announce the birth of our son John Xavier on Monday March 4th at 2:40pm. John is 4lbs 5oz, 18″ long and born at 31 weeks. Mom and son are doing well. John will be following in his big brother’s footsteps and spending time in the NICU.

Thank you for your prayers and support 🙂

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